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Keybot 4 Ergebnisse  www.priv.gc.ca  Seite 7
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Défis juridiques et pratiques liés à la protection de la vie privée dans le domaine des DSE
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Cherry Picking Among Apples and Oranges : Refocusing Current Debate About the Merits of the Ombuds-Model Under PIPEDA
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Ce projet portait sur un examen de certaines préoccupations des Premières nations en matière de protection des renseignements personnels dans le cadre des initiatives de dossiers de santé électroniques (DSE).
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This project involved an examination of First Nations privacy concerns in the context of electronic health record (EHR) initiatives. First Nations approaches to privacy are distinguished by their emphasis on community and group interests. In contrast, both the common law of privacy and international data protection regimes are built on the notion of individual rights. The potentially incommensurability of these two approaches to privacy have significant ramifications for First Nations; while EHRs are a useful tool for supporting holistic approaches to health, the privacy risks inherent in these systems have raised concerns among First Nations stakeholders.
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Ce projet portait sur un examen de certaines préoccupations des Premières nations en matière de protection des renseignements personnels dans le cadre des initiatives de dossiers de santé électroniques (DSE).
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This project involved an examination of First Nations privacy concerns in the context of electronic health record (EHR) initiatives. First Nations approaches to privacy are distinguished by their emphasis on community and group interests. In contrast, both the common law of privacy and international data protection regimes are built on the notion of individual rights. The potentially incommensurability of these two approaches to privacy have significant ramifications for First Nations; while EHRs are a useful tool for supporting holistic approaches to health, the privacy risks inherent in these systems have raised concerns among First Nations stakeholders.
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Après avoir tenu un colloque réunissant des intervenants des Premières nations et portant sur la protection de la vie privée des Premières nations et les systèmes de DSE, les chercheurs ont rédigé un troisième rapport, qui s’appuyait sur des techniques allant de la conception des exigences sociales à l’élaboration de modèles axés sur des agents.
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This project provided an analysis of the difficulties inherent in this domain. First, we conducted a literature search on communal approaches to privacy. Two reports were written from this survey: (1) a report concentrating on sociological aspects of communal privacy, and (2) a report detailing the differences between First Nations approaches and those found in common and statutory law. The latter provided more detail on the potential issues arising when attempting to reconcile these systems. In particular, we noted potential for clashes between individual and collective interests. After holding a symposium on First Nations privacy and EHR systems with First Nations stakeholders, we drafted a third report that used techniques from social requirements engineering to construct agent-oriented models. These models were then used to elicit some key concerns and difficulties. We pointed out important future work to be performed. We hope the results will be of use for a variety of stakeholders, including researchers, public sector agencies and First Nations.