patientenregister – English Translation – Keybot Dictionary

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  10 Hits www.censhare.com  
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Zentrales Patientenregister für das AID-Net (Dr. E. Lainka, Duisburg-Essen)
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Einrichtung einer genetischen Biobank für autoinflammatorische Erkrankungen (Prof. D. Foell, Münster)
  2 Hits vargon.hr  
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), gefördert vom Bundesministerium für Gesundheit, ist die Bereitstellung einer individuell anpassbaren Softwarelösung für SE-spezifische Patientenregister.
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), funded by the German Federal Ministry of Health, provides a reusable software for RD registries.
  2 Hits www.swissmedic.ch  
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Die Schweizerische Gesellschaft für Plastische, Rekonstruktive und Ästhetische Chirurgie (SGPRAC; http://www.plastic-surgery.ch/ ) bietet seit letztem Jahr ein spezifisches Patientenregister für alle Frauen mit Brustimplantaten an.
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Since 2011, the Swiss Society for Plastic, Reconstructive and Aesthetic Surgery (SGPRAC; www.plastic-surgery.ch) has made a specific patient register available for all women with breast implants. Inclusion therein is possible via the physician and makes it possible to monitor patients and to send reminders for the regular checks.
  2 Hits www.bio-pro.de  
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Ziel ist es, für Patienten, die an so genannten Organoazidurien und Harnstoffzyklusdefekten leiden, ein zentrales europäisches Patientenregister zu etablieren und evidenz-basierte Behandlungsleitlinien zu entwickeln.
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The objective of the project is to establish a central European registry and develop evidence-based treatment guidelines for patients suffering from organic acidurias and urea cycle defects. These diseases, which represent a group of rare inborn errors of metabolism that lead to the accumulation of neurotoxic intermediary products, can lead to death or severe organ damage if left untreated. However, the early diagnosis of these diseases often enables the establishment of successful lifelong therapies.
  www.eu-patienten.de  
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Hier finden Sie neben den Expertenzentren auch Informationen über aktuelle Forschungsprojekte, Diagnostikanbieter, Patientenregister, Biobanken, klinische Studien, Netzwerke und Selbsthilfeorganisationen.
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Orphanet is currently the most comprehensive reference portal for information on rare diseases and orphan drugs. As a freely-accessible Internet database visited by 30,000 people every day, Orphanet currently contains information from 40 countries, and lists more than 6,000 rare diseases (as per October 2014). The database contains an online encyclopaedia drawn up by European experts, as well as a list of services offered for patients and experts. Here you will find both expert centres and information on current research projects, diagnostic-providers, patient registers, biobanks, clinical studies, networks and self-help organisations.
  mstislavl.mogilev-region.by  
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In der Herz-Kreislauf-Forschung ist ein bundesweit angelegtes Zentrum besonders sinnvoll: Die Forschung hat hier in den letzten Jahren schon viel erreicht; aus diesem Grund sind weitere Fortschritte eher in kleinen Schritten zu erwarten. Dazu werden immer größere Studien, Patientenregister und Biomaterialbanken benötigt.
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In cardiovascular research, a centre with a nationwide reach provides many advantages. This field has seen enormous progress in recent years; for this reason further progress is expected to be incremental rather than paradigmatic. To continue to make progress, ever larger multi-centre clinical studies, patient registries and biobanks will be needed. This can be implemented much better in one nationwide centre than in many small single institutions. At the seven DZHK partner sites – Berlin, Göttingen, Greifswald, Hamburg/Kiel/Lübeck, Heidelberg/Mannheim, Munich and Rhine-Main - more than 140 recognized experts are working in concert.