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Само за 5 години успяхме да изградим силни връзки и отношения на взаимно доверие с Японската пациентска асоциация, международни пациентски организации, университети, болници, фармацевтични компании, както и с японските министерства на здравеопазването, на икономиката и на образованието.
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As a child growing up in a small town and knowing most people, there was an awareness of those who had uncommon diseases with many special and unmet needs. Cystic fibrosis, childhood leukemia, brain tumors, Marfan syndrome, Polio, cerebral palsy, Parkinson’s disease, and Multiple Sclerosis were a few of the diseases that I encountered very early in my life. I sensed that at some time in the future, I would have some involvement with patients and families with these diseases. When Dr. Marion Finkel, the first Director of the Office of Orphan Products Development at FDA, asked me to join the new office in 1982, it was an easy decision to join the very small initiative with an unknown and uncertain future.
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