успе – -Translation – Keybot Dictionary

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  2013 | Challenges.mk | ...  
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“Иако сме Европска Гоше Алијанса, работиме буквално со целиот свет. Досега направивме многу, а особено последниве години успеавме да го придвижиме напредокот во земјите соседи на Македонија. Подигнувањето на свеста за ретките болести во вашата земја, како и наоѓањето полесен пат до третман за пациентите на кои не им е овозможено тоа, останува наш и мој личен предизвик“, изјави г-ѓа Колин.
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“Even though we are European Gaucher Alliance, we work through the whole world. Until know we have accomplished a lot, and especially the last years we succeed to move forward regarding the progress of treatment in the neighbor countries of Macedonia. Raising awareness about rare diseases in Macedonia and finding the way for treatment of the patients with rare diseases is also my personal challenge and I hope that we will find solution for treatment of the patients.”
  октомври | 2016 | Chall...  
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Поддршката од EГA е многу важна; поради EГA успеавме да се збереме и да збруваме и сега има здружение на пациенти во Албанија кое наскоро ќе се приклучи на EГA. Се согласивме дека најважното нешто што во иднина можеме да го очекуваме од EГA е едукација на лекари за дијагноза и третман.
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The support from EGA is very important, because of EGA we manage to came together and talk, and now there is an association of patients in Albania that will soon join EGA. We agreed that the most important thing in future that we expect from EGA in this region is education of doctors about diagnosis and treatment. We hope to have the next meeting in Albania in spring time and to have guest lecturers – doctors from EU.
  2013 | Challenges.mk | ...  
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Во преговорите со Министерството за Зравство успеавме да стигнеме до повторно основање и започнување со работа на Комисијата за ретки болести, на чие чело застана доктор Аспазија Софијанова, директор на Клиниката за детски болести во Скопје и се надеваме дека со работењето на комисијата ќе се зголеми соработката и напорите на министерството за обезбедување третман на пациентите со ретки болести.
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“Today we are here to support families that live with rare diseases and to revive the hope that the rights of the patients (treatment) will be fulfilled in Macedonia. For no, the condition of treatment is not changed compared to the previous year. Two patients with mucopolysaccharidosis are treated from the Ministry of Health in Macedonia, four patients with Gaucher are being treated by donation from Genzyme (for 4-6 years), one patient with Gaucher is on clinical study through Genzyme. In negotiation with the Ministry of Health in Macedonia we came to reforming of the Commission for Rare Diseases in Macedonia and the chairman of this commission, Aspazija Sofijanova (director of the Children Clinic in Skopje) is today with us. We hope that with the work of the commission we will increase the cooperation with the Ministry for Health in order to find long-term solution for provision of treatment for the patients with rare diseases. Also for some medicines that are available for other diagnosis from the Health Fund in Macedonia, we hope that they will be available for patients with rare diseases that need such medicines in the everyday health care process.”